Tuesday, May 18, 2010

My UC/Jpouch Journey UPDATE

*UPDATE 5/18/2010*
Ok, so I don't know if I jinxed myself or what, but it turns out I am now having a bit of a drawback to my recovery. I was doing great until Saturday, May 8th. I was doing alot of running around and driving that day. Well, since my colon is gone, I do have frequent bowel movements, but this wasn't a problem, because I had total control. Then, while I was driving, it happened. I had the weirdest pain. It was sudden and acute, and very painful. Felt almost like I was stabbed down in my perineal area, radiating through my rectum and vagina. It was the most pain I'd felt since my surgery. It would continue to happen intermittently until I had a bowel movement, then I would be ok again for awhile, until it started all over again. Then, that night I noticed a dark vaginal discharge. (I had a hysterectomy, so I should not have any). I instantly became worried. Was my fistula back?? The worry began to eat me up inside. I worried about what it meant if my fistula was back. Stat surgery? another ileostomy bag? At first, I didn't want to acknowledge it, maybe if I ignored it, it would just go away...no such luck. Finally on Monday, I couldn't stand it any longer, I broke down in tears and literally was freaking out. I had to know...was it really coming from my vagina? I went to Urgent care, where it was confirmed that I did have a discharge. But he didn't know if it was just a regular vaginal infection or results of a fistula? He did a vaginal culture, but the results wouldn't be back for a few days. I saw my colorectal surgeon on Thursday. Then, another pelvic exam. OH JOY! He couldnt determine if it was stool or not, and couldn't actually see a fistula (but he never has been able to visualize it, even when there was no doubt in anyone's mind that it was indeed a fistula). So he sent me home and advised I see gynecologist. Then Friday I got the call from the urgent care doctor, the culture did show "possible fecal contaminant". DAMMIT! DAMMIT! DAMMIT!! So I scheduled appt with my gyn. I will be seeing Dr McCormick this Thursday....lets see what she says. My brother in law told Warren that its just a simple in out day surgery IF they can locate it. Praying it can be located and fixed....

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