Sunday, November 27, 2011

Neurologist appt on Tues

I have my appointment with my Neuro on Tues. This is a followup from my last brain MRI. He had said in past appointments that if this MRI shows no changes then we will just "wait and see" approach, and probably just repeat MRI in a year...

My question is this...What exactly are we waiting and seeing? I will be asking him if in his professional expertise, if he thinks I am just waiting for the inevitable? or if this could just stay at this point the rest of my life?

I have some definite good news, my LP came out ok. My cervical and thoracic MRI's came out ok and overall my memory test was Within normal limits, but I am concerned with what WAS found.

1) Brain MRI - "Most of the lesions involve deep or juxtacortical white matter. There are not very many periventricular lesions, probably less than 3." "meeting at least 2 but not definately 3 of the McDonalds criteria".

2) Advanced Cognitive Assessment (memory test) - Within normal limits, except for an abnormal score in the area of information processing speed, an area commonly affected in diseases involving white matter such as MS or microvascular disease. Second lowest score was in Executive Function, another domain commonly affected in white matter diseases.

3) The "new" bloodtest by glycominds that my neuro ordered that came up "positive" for MS. (which afterwords he told me is so new that he doesn't put alot of merit in it) But why did he run it then???? Just sayin.....

I have an upcoming appointment with my eye doctor and I will be asking questions about my eyes and the extreme worsening in my eyesight I've experienced lately.

I don't want MS, but if it looks like a good possibility that it may be heading that way, are there meds that can slow progression? He has started me on nortriptyline for my daily headaches I was having, and it has helped with the headaches, but could it also be helping to slow any progression or symptoms?

Oh so many questions, and probably not many answers, will probably walk out of there with the "wait and see" approach still...but will see, and update when I find out on Tues.